Okay. Let’s do that.

So about a week ago, I noticed I was entering Sadness on the Grief Cycle. I had no idea how much this would affect all the different aspects of my life. Before I could write 10,000 words a day. I could barely wait a day before blogging again. I was sewing and painting. I never wanted to sit down and read a book because I had too much stuff to do. I was getting settled into my exercise routine to prepare for the upcoming 5K for Autism Speaks.

Now…now I am so ridiculously unmotivated it is frightening. The lingering sadness I am experiencing is coloring everything I do. Even brushing my teeth seems futile. They are just going to be dirty the next time I eat something. Sigh.

Sometimes it is my mood, but more often it is just the lens through which I see everything. I am still happy about a lot of things. Tyler is doing really well in school so far. We just ordered our Team Ty-Ty t-shirts. The Walk Now for Autism Speaks is only a little more than a month away. I am doing a Vendor Show in three weeks which will hopefully raise more money for the Walk and help me sell some of my horde of made baby items.

But everything seems a little less colorful…a little washed out.

Especially my creativity. I open a New Post screen on my computer and just stare at the blank box. Nothing comes. I will sew for a few minutes and then just wander away from the sewing machine.

I look at my Walk Now for Autism Speaks Walk Fund, which isn’t growing anymore, and instead of brainstorming new ideas, I just get discouraged and close the app. And it is stupid that I am discouraged because I have exceeded my goal for the year and I am really proud of myself and the people who have supported me. But then I think about all the families struggling with non-verbal children and bullying (the parents get bullied too) and it just makes me sad.

The ONLY reason I even know I am on this repeating grief cycle is because I have read books on autism and families dealing with it. How many other parents are out there that are going through what I am going through right now, but they don’t understand why? You know, when I am talking about autism awareness and trying to raise support for it, I am not only picturing beautiful, gifted children who need our help. I am picturing the mothers as well. The ones who are confused, angry, sad, and broken. The ones going through what I have had to go through and am still going through. I can look into the eyes of a mother of an autistic child and see many things that I wish I could take away. There is pride, love, and fierceness, but there is also brokenness, betrayal felt, and exhaustion.

How can we keep the good things of this experience but remove the bad? Tyler is AMAZING. He is loving and kind and honest. Having Tyler as my son is a blessing and I love every part of him. Even his autism. I would have been devastated if my parents had tried to force me to be right-handed. I have no intention of curing or “fixing” Tyler’s autism. He is unique and we need his perspective and contributions. But raising him to function in our world should not be a traumatizing event. So he needs to do things differently or needs extra help. Okay. Let’s do that. I shouldn’t have to fight for it. I shouldn’t have to bleed for it. I shouldn’t have to be broken in the process.

I wish mothers lived in a world where their child, whoever they are, are accepted as who they are. Do they need time with a professional therapist to learn to talk? Okay. Let’s do that. Do they need to have a place they can go to when things overload? Okay. Let’s do that. Do they need to get a service dog to keep them from wandering off and hurting themselves? Okay. Let’s do that.

Why isn’t that the answer more often. Okay. Let’s do that. We need a Let’s do that World.

I need to get out of my sadness funk. Of course, that will just land me in another category. Sadness can be good. I usually use the time I am stuck here to put things into perspective. I build up some inner reserves and just let myself be still for awhile. Life doesn’t slow down though and right now Sadness is not working in my favor.

So time to move on to another Grief category. Okay. Let’s do that.

For more on the Grief Cycle categories and other information I have picked up along my journey, check out my book.

From my heart,

Rachel

(c) Rachel Flinchum 8/30/2013

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2 thoughts on “Okay. Let’s do that.

  1. I have definitely been where you are now. I have a hard time because I am outgoing and have reached out to parents to plan time to get our families together (when I feel like we’re starting to have a connection), but it never seems to happen. It’s like they are so afraid of that constant judging that they don’t even want to make a move to try…

    It can be a sad and lonely place in the world when you have a child with Autism.

    • It is crazy how hard everything becomes. As you learn to see through your child’s eyes, you learn to see experiences like they do. You become afraid of the chaotic play date and of any meltdown-inducible environment. You have your own meltdown. I just have to keep telling myself the bandaid has to be ripped off if things are going to get better. Thank you for your comment!

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